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Support for Caregivers in the SPS Community

Caring for someone living with SPS can bring unique responsibilities, challenges and support needs. We want to better understand your experience, what helps you in your caregiving role, and where additional support could make a difference.

This survey will take approximately 5-10 minutes to complete. Responses will be kept confidential. We are not asking for your name or email address, and we encourage you to avoid including names or other identifying details in your answers.

Share as much or as little as you feel comfortable with. Thank you for being part of this conversation.

To get started, click the bar at the bottom of the screen with the small arrow. 
1. What is your relationship to the person living with SPS? Please select one.

They are my: *This question is required.
2. What does your caregiving role typically involve?

Please select all that apply. *This question is required.
3. What are the most challenging parts of caring for or supporting someone living with SPS? 

Please select up to 3 choices. 
4. In what areas would you like additional support, information or resources?

Please select up to 3 choices. 
5. How would you prefer to access caregiver resources and support?

Please select up to 3 choices. 
7. May we share your written answers, without your name, in SPSRF communications? *This question is required.
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