Hello! Thank you for your interest in our study.
What is the purpose of this research?
Our team is working with the National Down Syndrome Society (NDSS) to better understand the experiences and needs of caregivers of individuals with Down syndrome across all ages. With your insights, we hope to identify resources and support that would be most helpful to the Down syndrome community.
This study will have two parts:
Part 1 - Remote Video Interviews: 60-minute interviews, to be scheduled between October 26 and November 6
Part 2 - Online Survey: 15-20 minute survey to be completed from mid-November through mid-December
You may express interest in either or both parts.
Why am I being asked these questions (below)?
These questions will help us determine if you would be a good fit for our study.
Your responses will be kept confidential and will only be reviewed by our team. We ask these questions to ensure we hear from a diverse range of families and develop an inclusive understanding of the needs and perspectives of the community.
This questionnaire takes about 5-10 minutes to complete. Your participation is voluntary, and you may stop at any time.