CLINN Survey: Topic Prioritization for Cutaneous Lymphoma Presentations

Please use this survey to identify which cutaneous lymphoma presentation topics would be most helpful to your clinical practice when caring for patients and care partners.

Instructions: Rank the six topics below from 1 to 6, where 1 is your highest priority or interest and 6 is your lowest. Brief descriptions are included to guide your ranking.

1. Current Therapeutic Landscape

Available systemic therapies by mechanism of action (for example, monoclonal antibodies, HDAC inhibitors, antibody-drug conjugates, immunotherapy, pathway inhibitors, and chemotherapy)
Treatment planning based on disease characteristics
Treatment selection based on patient history and clinical presentation
Evidence-based treatment algorithms

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2. Spectrum of Commonly Available Skin-Directed Treatments

Topical steroids
Mechlorethamine gel / nitrogen mustard ointment
Phototherapy
Radiation
Immunotherapy

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3. Introduction to CTCL/MF

Disease overview, including pathophysiology, epidemiology, and immunology
Common presentations and variants
Diagnosis and staging
Brief treatment overview
Overview of the clinical research pipeline

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4. Nursing Perspective

General management, care, and education for patients with cutaneous lymphoma
Skin-directed therapy side effect management
Preparing patients and care partners for systemic therapy administration and ongoing treatment navigation
Common side effects of systemic therapies
Assessing treatment effectiveness and toxicity
Practical tips for applying patient self-advocacy and navigating access to specialist services across all settings.

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5. Patient Discussion Panel

What is most helpful from the patient perspective?
How do interactions with nurses affect the patient experience—what helps and what does not?
What matters most to patients and caregivers that nurses can help facilitate?
What education can nurses provide that is most helpful?
In retrospect, what do you wish your nurse had done or said to better support you?

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6. Cutaneous Lymphoma Stem Cell Transplant (SCT): Physician and Nursing Perspectives

Pathway to transplant: who should be considered for SCT and why
- Disease history and current advanced stage/status
- Characteristics of the best candidates
- Progression markers that help identify appropriate candidates
Preparation for transplant
- Conditioning regimens to achieve complete response
- Nurse’s role in patient preparation, education, and care
Post-transplant care and key concerns: overview

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7. Please add an additional topic(s) not covered in the above list that you feel is important to your cutaneous lymphoma educational needs.