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PC Awareness 2026

#MakePCVisible

Every day, people living with Pachyonychia Congenita (PC) hide pain, limitations, fear, and exhaustion that most others never see. This PC Awareness Month, we’re inviting patients, loved ones, doctors, researchers, and supporters to help make the invisible visible by sharing one simple truth: “What people don’t see is…” You can participate by sharing any or all of the following:
  • A one-line statement
  • A selfie
  • A short video
  • A written reflection
Selfies or other photos for #MakePCVisible
Videos that answer the sentence, "What people don’t see is..."
Contact Information
Please check all that apply.