Power of Stories

Your Voice. Your Story. Our Strength.

Do you, a family member or friend have SMA? We would love to hear from you!

By sharing your experience with SMA, you help raise awareness, inspire others, and drive meaningful change.

Cure SMA uses community stories across social media, awareness campaigns, fundraising efforts, and advocacy initiatives—including in advocacy reports, statements, and letters — ensuring that every story helps advance our mission.

We are especially interested in how SMA has impacted your daily life and any challenges or experiences related to areas like health care, caregiving, education, employment, transportation or housing.

By submitting this form, you grant Cure SMA permission to use your story, quotes, name, and submitted photos across Cure SMA communications, including social media, marketing materials, and advocacy efforts.

First Name *This question is required.

Last Name *This question is required.

Email *This question is required. This question requires a valid email address.

Phone

Country *This question is required.

State *This question is required.

City *This question is required.

Share your SMA story and advocacy experience*

Tell us about yourself, including your SMA journey and successes or milestones you’ve experienced.

*This question is required.

What barriers or daily living challenges impact you or your family? What solutions or changes would you like advocacy efforts to address? (For example, healthcare access, caregiving, education, employment, technology, or transportation.)

Please include a few photos to accompany your story.
(Photos are required to be featured as a weekly spotlight.)

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I’m open to being contacted for the following opportunities:

Speaking at events or sharing my story publicly
Advocacy opportunities (like connecting with lawmakers)
Future Cure SMA campaigns or initiatives