Huntington Disease Society of America
Focus Groups and Interviews Participant Questionnaire
Thank you for your interest in participating in focus groups or interviews to learn more about the experiences of people living with Huntington’s disease (HD). This work is being sponsored by the Huntington’s Disease Society of America. We are interested in learning what impact symptoms and current treatments have on your ability to function in daily life. Results from these conversations will be used to inform on the treatment outcome priorities of people living with Huntington’s disease. Your participation in taking the questionnaire is voluntary.
We will conduct focus groups with a diverse group of people living with pre-symptomatic and early-stage HD. We will hold one-on-one interviews with people living with middle-stage HD. People living with middle-stage HD may have a companion attend the interview to support them. People selected to participate in the focus groups and interviews will receive a $75 gift card as a thank you for their time. The following questions will help us learn more about you. We will notify you by September 30 if you have been selected to participate in an HDSA Focus Group or Interview.