Pediatric Patients and Family Perspectives on NIH-funded Pediatric Research

The National Academies of Sciences, Engineering, and Medicine Committee on Strategies to Enhance Pediatric Health Research Funded by NIH is inviting pediatric patients and their families to share their experiences with and perspectives on NIH-supported pediatric research they participated in between 2014-2024. Please visit the project website for more information, including the Committee’s statement of task.

NOTE: All responses will be shared with the Committee, made available to the public upon request, and may be quoted (anonymously) in the Committee’s final report. We value all submissions and greatly appreciate the time taken to provide feedback and additional information for this study. The Call for Perspectives will close at 11:59 p.m. on July 13, 2025.

1. Please describe how NIH funding has been important in supporting pediatric research.

2. What has been your experience with NIH-funded pediatric research?

3. Please provide personal examples of how NIH research funding has improved child health care, child health, and child well-being.

4. What benefits do you see in participating in NIH-funded pediatric research?

5. What concerns, if any, do you have about NIH-funded research directly involving children?

6. If you have any additional thoughts, stories, or ideas you would like to share about the impact of pediatric research, please feel free to do so below.

Your submission will be shared with the Committee and potentially quoted in the committee’s final report. OPTIONAL: Please include any of the details listed below that you are willing to have included with your submission, keeping in mind that they could identify you. We value all submissions and greatly appreciate the time taken to complete this Call for Perspectives.

Initials:

Location (city and state):

General characteristics (example: 18-year old with cystic fibrosis):

Other (please specify):

I prefer not to have any of the above items shared with my submission

I prefer not to have any of the above items shared with my submission

I prefer not to have my submission quoted directly.

I prefer not to have my submission quoted directly.

If needed, may we follow up with you? If yes, please provide an email address at which we can reach you. If no, leave blank. This question requires a valid email address.

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