Skip survey header

Cure SMA Resource Request Form

CURE SMA RESOURCE GUIDE REQUEST FORM

Cure SMA Resource Guide Request Form

Cure SMA offers resource guides to support those with SMA and their families.  These resources cover a range of topics to enrich daily living at home and in the community. Below are all of the topics currently available. Please check the box next to any of the resource topics below to receive an emailed PDF copy within 48 business hours.
1. Contact Information *This question is required.
2. Relationship to Person with SMA *This question is required.
Healthcare providers provide direct care to patients with SMA in a professional setting (hospital, doctor's office, etc.) and typically hold a medical credential.
If not applicable, enter N/A.
Which best describes your industry affiliation? *This question is required.
Are you involved in SMA related research?  *This question is required.
3. ADAPTIVE SPORTS & RECREATION GUIDES - Please check the guides you'd like to receive
Space Cell Send this resource
Adaptive Recreation Guide
4. DRIVING & VEHICLE GUIDES - Please check the guides you'd like to receive
Space Cell Send this resource
Accessible Vehicle Options and Considerations
Driving- Becoming Licensed
5. EDUCATION & VOCATION GUIDES - Please check the guides you'd like to receive
Space Cell Send this resource
Children’s Books that Promote Diversity & Inclusion
Educator’s Guide to SMA
Guide to Talking with Children about Disabilities
Sample School Letter Guide
College Scholarship Guide
6. FINANCIAL GUIDES - Please check the guides you'd like to receive
Space Cell Send this resource
Protected Savings Options Comparison Chart
7. GENERAL GUIDES - Please check the guides you'd like to receive
Space Cell Send this resource
National Resource Guide
State Resource Guide
8. HOME MODIFICATION GUIDES - Please check the guides you'd like to receive
Space Cell Send this resource
Bathroom Accommodations Guide
Home Modifications Guide
9. INSURANCE GUIDES - Please check the guides you'd like to receive
Space Cell Send this resource in EnglishSend this resource in SpanishSend this resource in FrenchSend this resource in Chinese
Insurance Letter of Medical Necessity Checklist
Insurance Appeals Checklist
10. MEDICAL & EQUIPMENT RELATED GUIDES - Please check the guides you'd like to receive
Space Cell Send this resource
Adaptive Equipment List
Bathroom Equipment List
Surgery Hospital Stay & Recovery Guide
11. PERSONAL CARE ASSISTANT (PCA) GUIDES - Please check the guides you'd like to receive
Space Cell Send this resource
Guide to Advertising and Interviewing PCA's
Guide to Hiring and Maintaining PCA’s
12. TRAVEL RELATED GUIDES - Please check the guides you'd like to receive. 
 
Space Cell Send this Resource
Traveling with SMA Resource Guide
Air Travel Resource Guide
Air Travel Checklist
Airplane Cargo Hold Dimensions
Know Your Rights when Traveling by Airplane
Guide to Creating your own Custom Wheelchair Tag
Customizable "Attention when Handling" Wheelchair Instructions Sign Template