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Caregiver research survey: HCPs and researchers


iConquerMS is a virtual research network for people affected by MS, created and maintained by the nonprofit Accelerated Cure Project. Members of iConquerMS can create accounts on the website and participate in a variety of activities to shape and support research.

iConquerMS currently has over 8,000 members worldwide, the majority of whom are people living with MS. We are in the process of expanding our services, website functionality, and procedures to more intentionally engage MS caregivers as iConquerMS members. (Our definition of a caregiver, or care partner, is a person who provides unpaid support including physical, emotional, logistical, or social, to a person living with MS.) This project is guided by a multi-stakeholder steering committee that includes MS caregivers, people living with MS, advocacy groups, healthcare providers, and researchers.

When finished, iConquerMS will engage MS caregivers as research partners, inform MS research benefitting those living with MS, and enable research that improves the health and quality of life for MS caregivers. We will also partner with researchers with an interest in engaging MS caregivers to support their work.  Additionally, we will engage with healthcare providers who interact with and treat MS caregivers and support their needs for information and resources.

We are looking for feedback from healthcare providers and researchers as we design and implement support for MS caregivers within iConquerMS. We appreciate your sharing your perspectives in the following survey, which should take 5-10 minutes to complete. Thank you for your help!
1. Are you a healthcare provider or researcher? (Check all that apply.) *This question is required.
This survey is intended for healthcare providers and researchers. Thank you for your time!
Do you engage with or provide care to MS caregivers? (Check all that apply.)
MS caregivers can be involved in research in a variety of ways.  They can participate in MS research and provide observations and insights related to the person living with MS ("as observers") and/or they can participate in research focused on the needs, health, and well-being of caregivers.

Does your research include studying the experience of being a caregiver for someone with MS? (Check all that apply.)