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HEAP/EHEN questionnaire on cohorts

Data cohort questionnaire – consent and governance

Thank you for your support for our ELSI research project on participant facing governance of cohorts. We value your time and insights, and look forward to sharing the results of our research with you.

This questionnaire should take between 20 and 30 minutes to complete. Your answers will provide valuable empirical evidence on how data cohorts are meeting the challenges relating to consent and governance.

Background information on the research project and the questionnaire is available on the HEAP project website.

This questionnaire has been developed as part of the Ethics and Regulations work package of the Human Exposome Assessment Platform (HEAP) project, which is funded by the EU Horizon 2020 programme.

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