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Newly Diagnosed Survey

Newly Diagnosed Survey

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Cure SMA maintains information about the SMA community. This information is used to understand the SMA population at the time of diagnosis; to track data on the experience of living with SMA; and to help clinicians, researchers, and our biotech and pharmaceutical partners accelerate the development of drugs and improve care for SMA.

Completion of this survey is entirely voluntary. You may complete all, some or none of this form. If you have any questions, please feel free to contact communitysupport@curesma.org
 
1. What is your relationship to the affected individual? *This question is required.