Thank you for taking the time to share your experiences as a care partner with us.
We are working to develop a “toolkit” to support care partners in their role of supporting someone with multiple sclerosis (MS).
For the purposes of this project, we are defining a care partner as someone who provides unpaid assistance to a relative, friend, or neighbor requiring help with activities of daily living related to managing multiple sclerosis (MS). The help you provide may take many forms, including emotional support, assistance with daily activities in the home, transportation, help with bill-paying/paperwork, and/or hands-on physical care.
The purpose of the survey is to gather information from as many family care partners as possible about the care partner experience – the challenges, concerns, feelings, and needs – from the time of the diagnosis through the disease course. Each person’s experiences are different and are likely to change over time. Wherever you are along the way – a newcomer to the care partner role or someone who has lived the role for many years – we want to understand your experience.
This survey is expected to take 10 minutes to complete. Your responses will help us create the resources and tools care partners need to succeed and thrive. Thank you.