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Cure SMA Care Series Publications & Clinic Materials - Health Care Provider

Publications & Clinic Materials Order Form

Please fill in shipping and contact information so our distribution team can ensure the packets make it right into clinic for your patients and families. 

*Materials will be distributed to US health care providers - international requests should contact info@curesma.org or 800.886.1762

Our materials are also available for free via download. Please visit:   https://www.curesma.org/care-series-booklets/ 
 
1. Contact Information *This question is required.
Are you involved in SMA research? *This question is required.
2. Tell us about your clinic size so we can best ensure to keep you stocked on information materials for patients, families and clinicians! 
3. CARE SERIES BOOKLETS

Publications like our Care Series Booklets assist with providing the entire community with the information they need to make decisions about treatment and care.

Please select the language(s) you would like to receive the booklet in.
*Additional languages available online for download! Be sure to check out our website at www.curesma.org/care-series-booklets.
 
4. Please select quantities for English booklets.
Select quantities only for the booklets you would like to receive. Other options may be left blank.
Space Cell Quantity
Understanding SMA: Support, Resources and Hope Trifold
This trifold brochure provides a quick overview of what causes SMA, what to do if diagnosed, important things to know and how Cure SMA can help.
Understanding SMA Booklet
This booklet covers all the basics of SMA, including genetics, diagnosis, types of SMA, daily life with SMA, and much more.
Community Support Services Booklet
This booklet outlines our resources and support programs, including ongoing national and local programs, ways to stay connected, and more.
What You Need to Know and Do About an SMA Diagnosis Booklet (For Health Providers)
This booklet offers a foundation for understanding SMA if you are a healthcare provider learning about an SMA diagnosis for the first time.
What You Need to Know and Do About an SMA Diagnosis Booklet (Family Guide)
This booklet offers a foundation for understanding SMA if you are a parent or a patient learning about an SMA diagnosis for the first time.
Nutrition Basics Booklet
This booklet explores the nutrition principles for someone living with SMA, potential complications, feeding tubes, and more.
Genetics of SMA Booklet
This booklet helps navigate conversations about genes, proteins, and DNA related to SMA. It includes definitions, explanations, and diagrams.
Scientific Considerations for Drug Combinations Booklet
This booklet focuses on the complex topic of combining treatments and discusses important considerations when thinking about combo therapy.
Learning About Clinical Trials Booklet
This booklet covers the clinical trial process, phases, accelerated approval and expanded access, choosing to participate, and more.
Caring for Your Emotional and Mental Health Booklet
This booklet outlines mental and emotional health considerations for those with SMA or those who care about someone who has SMA, as well as strategies for support and coping.
Living Unlimited: Newly Diagnosed Booklet
This booklet is for new members of the SMA community experiencing an SMA diagnosis for the first time and wondering how it will impact the life of their child and that of the family.
Living Unlimited: Adults with SMA Booklet
This booklet is geared for adults with SMA. Thanks to contributions and feedback from other adults with SMA, we have collectively pulled together this booklet on topics that are important to the adult community specifically.
4. Please select quantities for Español (Spanish) booklets.
Select quantities only for the booklets you would like to receive. Other options may be left blank.
Space Cell Quantity
Understanding SMA Booklet
This booklet covers all the basics of SMA, including genetics, diagnosis, types of SMA, daily life with SMA, and much more.
Community Support Services Booklet
This booklet outlines our resources and support programs, including ongoing national and local programs, ways to stay connected, and more.
What You Need to Know and Do About an SMA Diagnosis Booklet (For Health Providers)
This booklet offers a foundation for understanding SMA if you are a healthcare provider learning about an SMA diagnosis for the first time.
What You Need to Know and Do About an SMA Diagnosis Booklet (Family Guide)
This booklet offers a foundation for understanding SMA if you are a parent or a patient learning about an SMA diagnosis for the first time.
Nutrition Basics Booklet
This booklet explores the nutrition principles for someone living with SMA, potential complications, feeding tubes, and more.
Genetics of SMA Booklet
This booklet helps navigate conversations about genes, proteins, and DNA related to SMA. It includes definitions, explanations, and diagrams.
Scientific Considerations for Drug Combinations Booklet
This booklet focuses on the complex topic of combining treatments and discusses important considerations when thinking about combo therapy.
Caring for Your Emotional and Mental Health Booklet
This booklet outlines mental and emotional health considerations for those with SMA or those who care about someone who has SMA, as well as strategies for support and coping.
Living Unlimited: Newly Diagnosed Booklet
This booklet is for new members of the SMA community experiencing an SMA diagnosis for the first time and wondering how it will impact the life of their child and that of the family.
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